Alnylam Amyloidosis Connect: Supporting effective MDTs and optimising the referral pathway to the National Amyloidosis Centre (NAC) or Amyloidosis Network centres
Delivering optimal care for the patients with amyloidosis requires close collaboration across clinical specialties and centres. Alnylam Amyloidosis Connect brings together practical tools and guidance to support healthcare professionals in establishing and enhancing multidisciplinary teams (MDT), while helping to optimise referral pathways to the NAC and regional amyloidosis network centres. Together these resources support co-ordinated care, timely diagnosis, appropriate referral and improved patients outcomes.
Whether you are exploring readiness to establish a new MDT, strengthening an existing network or improving referral pathways into Amyloidosis Network centres, these resources are designed to support structured, efficient, and patient centred collaboration.
Explore the Alnylam Amyloidosis Connect resources
Click on the titles below to view or download each resource.
Roles & Responsibilities Guide
Provides an overview of the key roles within an amyloidosis MDT and how they work together to deliver coordinated care. This guide is a useful first step for clinicians looking to understand team requirements.
How-To Guide
Provides step-by-step guidance on setting up and running an effective amyloidosis MDT. Useful for clinicians establishing or developing MDTs by outlining how to define scope, engage relevant specialists, and establish processes for referrals, meetings, and care pathways.
Remote Referral Guide
Outlines the process for referring patients with suspected or confirmed amyloidosis to the National Amyloidosis Centre (NAC). Useful for clinicians managing patients within established pathways, including guidance on when and how to refer, required information, and what to expect from the shared-care model; supporting timely access to specialist input.
MDT Meeting Agenda Template
A structured template to support consistent and efficient amyloidosis MDT meetings. Developed to support MDT delivery, covering key agenda items including referrals, case reviews, and treatment planning, helping to support clear, coordinated clinical decision-making.
The Alnylam Amyloidosis Connect ‘In conversation’ video series
Click on the titles below to view or download each resource.
Episode 1:
From local initiative to regional network
Episode 2:
Amyloidosis MDT in practice
Episode 3:
Collaborating with the NAC
Enhancing care through multidisciplinary collaboration
Amyloidosis is a complex and often under-recognised condition requiring input from multiple specialties. Through Alnylam Amyloidosis Connect, these resources aim to support earlier diagnosis, streamline care pathways, and enhance collaboration across cardiology, haematology, neurology, and beyond.
Get in touch
If you would like to learn more about any of these resources or require support with MDT implementation, we’re here to help.
Contact us to request further information or arrange a discussion with a member of the team.